This "journey" within our journey has been long. And at times it has felt tortuous. I have always wanted to be able to walk into a doctor's office, trust what they are saying, and walk out with peace that I could trust their opinion. Unfortunately, that has not been my experience. It takes an enormous amount of prayer not only mine, but others praying with me as well before I walk into a doctor's office to discuss Eli and what is going on with him. Sadly, my hubby and I have realized doctor's are a trigger for my PTSD. Probably NOT a good thing when you have to take your child to the doctor's often. Fortunately, God has given my hubby a job that allows for him to be off on Eli's "big" appointment days without affecting the rest of his leave so he can help me when it strikes.
I was actually trying to wait until we had an official date to "update" on what is happening, but God has led me to update now. Eli will be having surgery. He will be having a carotid-subclavian bypass using his internal iliac artery. The doctor who will be performing the surgery is a geriatric doctor (meaning he treats older people). I cannot explain to you the looks we get as we walk into the doctors offices or the questions my hubby gets as he calls. It's one of those things that we look at through this and actually makes us laugh. Anyway, this doctor has to get permission from our Children's Hospital to perform the surgery there. Once that happens we will have one more conference with him in the office so we can ask him questions.
It's one thing when your child is having a surgery lot's of other's parents have been through with their kids. It's a COMPLETELY different when there is no one to ask questions. Right now I can only imagine or guess some things and it can be overwhelming. Luckily I have some amazing friends who have given me "pep talks" when I've needed them to help me regain my focus on Christ and allow Him to carry me through this.