Thursday, June 7, 2012

Just An Example

So I have been trying to post some videos for a while.  Unfortunately I can only get one to post.  Also, please excuse my less than awesome video skills.  It's proof I will never be competition for anyone professional. 

Anyway, this is what happens to Eli when he plays.  Some might attempt to say these are migraines.  I assure you they are not.  Migraines would NOT happen only when he plays.  He would just get them randomly.  Also if you watch he will point to the back of his neck.  This is where the bloodflow is messed up and skips going to his brain.  This is our life.  This is what most people don't see.  And believe me if I could get one with him actually passing out I would.  Unfortunately it's so quick there is no way for me to get one unless I follow him around 24/7.  I am thankful we get a break from these when he can't go outside and play.

I also wanted to thank my wonderful son, Christian, for helping me upload this.  Can I tell you how much trouble I am in when he moves out?  Since videos are an EXTREMELY rare event on here, I can pretty much guarantee they will NEVER happen.


  1. thank you for the helps to give some perspective, albeit small I am sure, of what Eli (and you) have to go through. I cannot begin to imagine all of what is not caught on video that you have to face. praying for you all.

  2. Wow! That was a while ago I didn't even know you were recording. Maybe it was the combination of both of our children and the TV. That video for those of you who've not witnessed it it got worse. I know this because he was at my house in this video. He screamed and cried and threw up and nothing helped his pain at all in spite of children's tylenol. I felt so bad for him. He didn't get up and play with anyone although you could tell he wanted to. He was laying down for over an hour because they came over after church and then we went to church for rehersal.

  3. I've been meaning to comment...
    Thanks for posting this video...I can only imagine how hard it is for you to watch because even I want to just scoop him up and make it all better!! I hope you get answers soon. How frustrating! :(