Tuesday, July 26, 2011

Another Event Monitor

I wasn't going to actually post anything on my actual blog (I did on caringbridge), but something is just eating at me to just post it. Eli is getting another event monitor to record his heart activity at the push of a button at home, when he has the "episodes" we have been seeing. We fear he may be having arrythmia problems, but we can't say for sure since they need to catch them. He's at high risk for them with his heart defects. I'm just afraid we won't see them so I keep saying what's the point. However, on Facebook some wonderful parents of other heart kiddos and adult congenital heart defect survivors have encouraged me to request one. So I did. At first the nurse said they would probably just wait until his appointment on Monday. Afterall it is just six days away. However, shortly after I got off the phone with her, she phoned back saying they were going to send one out and we would talk more about what we are seeing on Monday. So anyway, if you could send some prayers our way we all would GREATLY appreciate it. (And that is an understatement.)


  1. I'm glad you posted here because I dont have his caringbridge page info! Sending prayers your way...

  2. What types of episodes has he been having? Logan had several unexplained episodes as well and we went through several monitors and eventually we had a loop monitor put in. Of course he hasn't had one since then but at least we are prepared if he does have one.

  3. Stefenie - When Eli has an episode he starts complaining of a headache and he's dizzy, then he gets cold clammy and sweaty and very lethargic to the point of almost passing out. Then he will typically get freaked out and won't talk. At times he'll grab his chest and say "my heart" while this is going on. Sometimes he'll just grab his chest and say "my heart" without the cold clammy sweaty thing. He's complained of a slow heart beat and a fast one. The cold clammy sweaty thing freaks me out since it brings back BAD memories from when he was a baby. But it is also freaking other people out who see it too. He's had episodes in front of both of his therapists, my MIL, friends, etc. Now I just need him to have one for the cardiologist.